Originally Posted by
Hanneke
Hate to say this Hes, but my thoughts for both Stolly and you were a reaction to an infection with Lyme and/or one of its co-infectiosn.
As you know it caused an aggressive reactive arthritis in my knees and neck. I also have a friend whose main symptom is Lyme carditis and the heart muscle is inflamed from it... very similar to Stolly's issues.
Testing is very unreliable so negative lyme tests mean nothing. I have had two blood tests and my synovial fluid has been tested as well as a synovium biopsy. All negative. However, I had antibiotics between being bitten and being tested, which messes with the results as well, and after almost 2 years of infection, the body stops producing antibodies as the infection has become systemic.