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Thread: Reynauds Syndrome

  1. #1
    Join Date
    Jan 2018
    Over Haddon

    Reynauds Syndrome

    The ends of my toes have been sore for a few years but I have put it down to pressure caused by running downhill. Recently I have had a couple of blisters on my toes which have not wanted to heal and a particularly large one on the back of my left heel which wouldn't heal and got infected and stopped me running/cycling for 6 weeks. When not exercising my feet are either red hot or freezing cold and sometimes bright purple which gave me a bit of a fright.Also, one of my fingers would randomly go white and lose sensation.

    Today I have seen a NHS podiatrist who tells me that I have Reynaud's Syndrome. The soreness on my toes is chilblains.
    She gave me a Doppler scan which has shown that my general circulation is fine, which is good news.She has given me lots of what seems good advice, the main thrust being to try and keep the extremities at a constant temperature as it is variations in temperature that makes things worse.

    I am sure others on here will have had similar symptoms or diagnosis and wondered if they had any advice re types of dressings/socks/gloves/clothing that that may alleviate the problem both indoors and out.
    Visibility good except in Hill Fog

  2. #2
    Master Daletownrunner's Avatar
    Join Date
    Sep 2012
    Out Running
    Mrs DTR has this in her hands (it does only seem to effect one of her hands) she always wears gloves when it’s slightly cold and also puts those disposable hand warmer jobbies inside a pair of convertible mitt/ gloves when it’s especially cold which seems to do the trick, her hands still get cold and she does sometimes hit me with the freaky cold hand of death when we’re driving back from running club but these have definitely helped, she doesn’t have issues with her feet but I do know that you can get foot warmers, not sure how practical these would be though

  3. #3
    Senior Member
    Join Date
    Mar 2012
    I've had Raynaud's in my hands for years. The first time it happened I thought my fingers were going to fall off! Dead man's fingers. It only happens to me after a run, especially if it's been wet and windy. Just cold and I'm fine. It always comes on about 10 minutes after I stop and lasts 30 minutes or so. It's quite uncomfortable when the blood comes back in. My wife says I've always been a 'cold person'! My hands are always cold as are my feet. She likes nothing better than me warning my feet up on her back in bed. She says I need to fatten up a bit.
    The GP offered my beta blockers but I don't like to take stuff unless it's necessary. Beta blockers can make you feel a bit slowed up. Even if I wear gloves it happens so I just accept it.
    It seems to be quite common up here, I think circulatory problems are rife in Scotland.

  4. #4
    Master PeteS's Avatar
    Join Date
    Aug 2009
    Live in Brum, run in Worcestershire and Shropshire
    I have it in my hands and to a much lesser extent in my toes. I also commute to work by bicycle so dread the winter months. I have a huge number of gloves (much to my wife's redicule) - a pair suitable for every occasion. Stating the obvious I know but trying to stay as warm as possible for as long as possible reaps rewards. Winter cycling is often in 2 pairs of gloves, with hand warmers and then the shortest route possible. You get the idea.
    Running is usually outer windproof mits with an inner glove - a merino liner.
    As for the feet, I had to invest in winter cycling boots but when running in the cold I'm usually not too bad until the temperature start to approach freezing. Then I use 2 pairs of wool socks - the inner ones with individual toes. Even then I have to admit defeat on really cold days as it is just too painful to run when ground is hard.
    Aftercare is usually a good warm bath and gently massage (dreading the rush of blood and the associated pain!)

  5. #5
    Join Date
    Feb 2018
    I have Reynaud's but not very badly. Alpaca wool socks are excellent. I usually warm up two or three miles into the run, take gloves off, waddle along happily for a few miles and then when I get home and get into a nice warm shower my fingers go white again.

  6. #6
    Member Adam's Avatar
    Join Date
    Jun 2012
    Just to echo those above, I have Reynauds in my hands and like Pete, it is worst when cycling in winter.

    I find if I can keep my wrists warm it make a huge difference. An old pair of wool hiking socks with the foot chopped off are useful makeshift wrist warmers.

  7. #7
    Huh. You learn something new everyday. I'd put my dead-man's fingers down to simple old age, but maybe there's another explanation.
    I was at Wolf's Pit the other week, and a woman asked me to take her photo, and recoiled in horror when I took the phone off of her. She actually said something along the lines of 'Oh my god what's happened to your fingers?'
    It's one of the reasons I moved to bib magnets - I was forever putting pins through my fingers without noticing.

  8. #8
    Senior Member DangerMouse's Avatar
    Join Date
    Aug 2019
    I have this too!

    I have tried quite a few things, but most of all I find that making sure I am fully hydrated as much as possible really helps reduce the number of 'incidents'. This is purely anecdotal.

    I use a 'water tracker' and religiously add every drink I have to it so I can keep a check on my intake against the level I have set for myself as a minimum daily requirement.

    Sometimes this means I drink more than I actually need, but I'd rather be getting rid of a little excess than not having enough.

    Hope this helps

  9. #9
    Moderator noel's Avatar
    Join Date
    Jan 2007
    Western Peak District
    I used to get sore toes in the winter. Wear socks at night (if you don't already).

  10. #10
    Senior Member
    Join Date
    Jul 2009
    White fingers/toes here too.

    I find that a windproof mit over the top of good gloves really makes a difference to my hands in the winter. I got a pair of the super thin montane mitts the other year for the Highlander and wearing these over my gloves was a revelation for me.

    My feet go white/numb as well in winter, especially when running through freezing bogs. Neoprene socks are the best things I've found for my feet so far (from a sailing shop). Don't stop my feet going white but really help the pain/numbness while out. Wearing these I sometimes don't realise my toes have "gone" until I take my shoes off.

    Hehe sometimes I wonder what my neigbours think I'm doing when the blood comes back into my feet while standing in the shower.

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